Diabetes

• 2023 International Guidelines for the Diagnosis and Management of Hyperinsulinism
  Diva D. De Leon; Jean Baptiste Arnoux;Indraneel Banerjee; Ignacio Bergada; Tricia Bhatti; Louise S. Conwell; Junfen Fu; Sarah E. Flanagan; David Gillis; Thomas Meissner; Klaus Mohnike; Tai L.S. Pasquini; Pratik Shah; Charles A. Stanley; Adrian Vella; Tohru Yorifuji; Paul S. Thornton
• 2022 Management of type 2 diabetes in young adults aged 18–30 years: ADS/ADEA/APEG consensus statement
  April 2022
• 2022 ISPAD Clinical Practice Consensus Guidelines
  ISPAD
• 2022 Qld Disordered Eating Guidelines
  March 2022
• 2021 ADS/ADEA/APEG/ADIPS - Utilisation, access and recommendations regarding technologies for people living with type 1 diabetes (file)
  Authors: Anthony J Pease, Sofianos Andrikopoulos, Mary B Abraham, Maria E Craig, Brett Fenton, Jane Overland, Sarah price, David Simmons and Glynis P Ross
• 2021 Australian National Diabetes Strategy 2021-2030
  August 2021
• 2021: Utilisation, access, and recommendations regarding technologies for people living with type 1 diabetes (link)
  Anthony J Pease, Sofianos Andrikopoulos, Mary B Abraham, Maria E Craig, Brett Fenton, Jane Overland, Sarah Price, David Simmons and Glynis P Ross
• 2020, Screening, assessment and management of type 2 diabetes mellitus in children and adolescents: Australia and New Zealand Society for Paediatric Endocrinology and Diabetes guidelines
  Med J Aust 2020; 213 (1), July 2020
• 2020, Australian Living Evidence-Based Clinical Guidelines for Diabetes
  Published 27 November 2020
• 2019, Use of CGMS for Children and Adolescents with T1D at school and preschool
  Developed by the APEG Diabetes Subcommittee, July 2019
• Youth Diabetes - resources for health professionals
  Menzies school of Health Research

Australia and New Zealand

INTERNATIONAL

• CGM
  • NDSS
  • Medtronic
  • Dexcom
• Freestyle Libre
• ISPAD Guidelines for Diabetes Technology
• Advanced Technologies and Treatments of Diabetes
• Use of CGMS for Children and Adolescents with T1D at school and preschool
  Developed by the APEG Diabetes Subcommittee, July 2019

It is advised to use the DKA protocol for your local tertiary referral centre.

Australia and New Zealand

GUIDELINES AND CONSENSUS STATEMENTS

If unwell, please refer to information provided by your local care team and if needed contact them for advice with regards to management during illness and particularly if ketones are present.
Helpful overview of sick day management can also be found in the  ISPAD 2018 Clinical Practice Consensus Guidelines (Chapter 13) 2018

• Diabetes Australia
• Diabetes Australia – State Websites: NSW, Queensland, Tasmania, Victoria, Western Australia
• Diabetes New Zealand
• Diabetes Kids & Teens – DA NSW website for children, teenagers and parents & carers
• Australian Centre for Behavioural Research and Diabetes

Australia and New Zealand

• Dietitians Australia
• Dietitians NZ
• Coeliac Society

• Qld Disordered Eating Guideline (2022)
• Healthy eating and carbohydrate counting for children and adults with type 1 diabetes. – International Society for Pediatric and Adolescent Diabetes (ispad.org)

• Toddlers & Diabetes
• T2 Diabetes: Healthy Lifestyle Guide for Children & Teens
• T1 Diabetes: Flexible Food and Insulin
• T1 Diabetes: Healthy Eating on an Insulin Pump
• Kids Collection – Kids Orientated Support Products

EDUCATION COURSE

• Nutrition Related Care in Paediatric Diabetes Course

• NHMRC Guideline – Diabetic Retinopathy
• Recommendations for complication screening can be found in the ISPAD Clinical Practice Consensus Guidelines 2014
• Microvascular and macrovascular complications ISPAD Clinical Practice Consensus Guidelines 2018 (Chapter 18)
• Other complications and diabetes-associated conditions ISPAD Clinical Practice Consensus Guidelines 2018 (Chapter 19)
• APEG Position Statement:  The Diabetes Control and Complications trial:  Implications for the child and adolescent  Med J Aust. 1995 Apr 3;162(7):369-72

• Caring for diabetes in children and adolescents – a parents manual 3rd edition 2010
• New Zealand:  Living well with diabetes October 2015
• History of Diabetes Camps in Vic 2018
• The Needs of People with Diabetes & Other Chronic Conditions in Natural Disasters
• List of sportspeople with diabetes (Wikipedia) – ‘if anyone is aware of elite sportspeople with diabetes who are not on this list, please let APEG or Wikipedia know’.  Others listed below.
  
  • Netball – Sarah Klau and Verity Charles
• Runsweet.com – Diabetes in Sport
• Children with Diabetes (USA)

• Immunology of Diabetes Society
• Juvenile Diabetes Research Foundation International (JDRF)
• Australasian Diabetes Data Network (ADDN)
• Environmental Determinants of Islet Autoimmunity (ENDIA) Study
• COVIDIAB:  a registry specifically designed to establish the extent and characteristics of new-onset, COVID-19-related diabetes
• ATIC: Australasian Type 1 Diabetes Immunotherapy Collaborative

Children and young people with diabetes have the fundamental right and should be given the opportunity to participate in and enjoy a normal school experience in a safe and inclusive environment. They must be able to enjoy the same level of education opportunities and participation in school activities, including excursions, camps, sport and physical education as other children, free from any diabetes-related stigma.

The recently launched Diabetes in Schools program, funded by the Australian Government through the National Diabetes Services Scheme, has been established to provide families and school staff the education and support they need to help young people with type 1 diabetes to thrive at school. This national program has been developed in conjunction with Diabetes Australia (DA), the Australian Diabetes Educators Association (ADEA), the Juvenile Diabetes Research Foundation (JDRF) Australia, the Australian Diabetes Society (ADS) and the Australia and New Zealand Society for Paediatric Endocrinology and Diabetes (APEG).

In conjunction with this national program, information and advice about the support of young people with diabetes in schools and preschools should be obtained from the relevant state or territory’s department of education and/or local diabetes organisations and paediatric diabetes treating centres.

A starting list of helpful contacts and resources on this topic can be found below:

• Use of CGMS for Children and Adolescents with T1D at school and preschool
  Developed by the APEG Diabetes Subcommittee, July 2019
• Diabetes in School by Diabetes Australia Document (January 2017)
• Press release, 31 Jan 2019:  New school year poses extra stress for parents of kids with T1D
• Diabetes Australia:  Information re new Schools program
• Diabetes in Schools website (from 2020 launched program)

NSW & ACT

• Diabetes NSW & ACT
• as1diabetes
• Diabetes in Schools Program

Qld

• Diabetes Qld

SA

• Diabetes SA School Programs

Vic

• Diabetes Victoria
• School Policy Diabetes

WA

• Diabetes WA

New Zealand

• Kids Health
• Starship

• Australia
  • Gene tests for MODY are available from Mater Pathology.  For information about tests click here  and if ordering MODY gene tests please complete the following request form 
• New Zealand
  • Gene tests for MODY are available from NZSSD (Mody Calculator)

• NDSS Moving on Up
• Sex and Diabetes
• NDSS Pregnancy and Diabetes
• Transition Resources:  Queensland Health
• Transition Resources: Royal Children’s Hospital
• Transition Resources: NSW Health
• JDRF – Teen Toolkit

Currently in Australia the COVID-19 pandemic and Vaccination is a rapidly changing issue.  Restrictions are different in each state but seeking medical assistance and care is allowed in every jurisdiction.  Please seek medical help if you or your child need assistance.

Vaccine eligibility is also rapidly changing and will depend on where people live, but Type 1 Diabetes is considered a longterm condition for which vaccination is recommended and meets eligibility criteria for a prioritised vaccination compared with the general population.  Vaccination is being facilitated by the Federal and State Governments through GPs and dedicated Vaccination Hubs. Please look at on line resources to determine eligibility and where vaccination can be done.

• Australian Federal COVID-19 Vaccination Website
• New Zealand COVID-19 Vaccination Website
• Information for families of children with type 1 diabetes regarding Coronavirus (APEG)
• A message to the Diabetes Community (Diabetes Alliance)
• PREVENT LATE PRESENTATION OF T1D DIABETES WITH SEVERE SYMPTOMS (Diabetes Keto-Acidosis, DKA)
  • Please CLICK HERE to listen to Jerry Wales (Diabetes Subcommittee chair, May 2020) ABC radio interview re DKA concerns
    We are keen to ensure people who have symptoms that may suggest type 1 diabetes present early to their GP or hospital to avoid severe illness.  Please see video below (QCH)